Thursday 28 August 2014

Still feeling rough and decidedly pi55ed off

I am still coughing...the noise I create varies from loud to completely disgusting and likely to make people around me feel sick...

The lymphodema has spread upwards and I am now running out of clothes I can comfortably wear and I look far more pregnant than I ever did whilst expecting Mikey!

Yesterday was yet another trip to the Dr. This time it was the one who yells at you...apparently this is due to him going deaf. Maybe he should consider a hearing aid... but he did double check the report from my last X - ray.  The report highlighted an issue with my heart. I am 100% sure this wasn't mentioned when I was initially given the results but given my current  breathing problems it is now being taken seriously...weeks later.

Understandably I am not happy. They seem to only be reading part of the reports they are getting back. So what else are they missing for other patients?

I was sent off to the hospital for some blood tests, apparently there is a long waiting list at the surgery and he wanted the tests done ASAP. .. ironic considering I could have had them done weeks ago! On arrival at the hospital I discovered you are supposed to make an appointment rather than just turn up. I would have expected him to know this, but I'd imagine he has decided to disregard it! Thankfully they weren't busy and had soon extracted loads of blood...It looked decidedly thick and gloomy (a technical tern) so just waiting for the results now.

I am hoping/expecting them to come back clear.All I want is to get rid of this cough and get §one sleep. Tomorrow will mainly be spent napping as I have Mikey around on Friday so no chance to relax!!!

Wednesday 6 August 2014

Fed up

I will apologise now...I am feeling decidedly sorry for myself. The cough is now a very annoying squeaky noise and I am totally unable to have a simple conversation without at least one major coughing fit taking over.

My main issue, I feel is my lack of control over what is actually a natural reflex designed to shift the gunk out of my lungs. Unfortunately I seem to have used it as means to eat and then expelled the food. The other crazy thing is this stupid lymphodema is making me look fatter and fatter as the fluid is now bloating me around my stomach and waist. My calves are still solid and it is impossible for me to relax the muscles...This is making walking a challenge as my legs constantly feel tired and painful. I have no idea how long the waiting list is that I'm on...but I really need some help.

This has now been going on for 3+ months and has really brought me down.  I am dealing with constant pain and people telling me off for putting weight on. Most days, if I can be bothered to eat, my calorie intake is way below what it should be...and my new excess weight does a great wave motion demonstration.  I wouldn't mind if people actually asked rather than just made assumptions. I'm totally paranoid already without having comments stating the obvious.

I've lost count of the number of nights I've cried myself to sleep recently...and it scares me how much I hate my life at ťhe moment.

Monday 4 August 2014

Turns out I really was ill!!

I am currently still battling with a cough I've had since May. I had an x-ray done on 9/7/14 but the results never reached my GP...so last week I had another and amazingly on this mornings trip to see my Dr as I'm still feeling rather rough (OK, so dead is another good description!) to be told that it appears I've had pneumonia!! Luckily the last 2 lots of antibiotics have cleared the worst rubbish from my lungs, even though it appears the infection was viral as the sputum culture came back clear!

The cough could last for up to 6 months and for that time I'm going to continue to feel extremely tired and run down...what joy! But I should be firing on all cylinders as soon as I can as I refuse to be beaten by a microscopic virus!

Unfortunately the timing really messed up our holiday as I was at my worst that week...so I'm now ready for next year and I am going to have a real break and have quality time with my family without feeling completely washed out. This year really was a wash out, even though we had no rain and unbelievably hot weather!

I've decided I'm going back to work tomorrow...I wish I could control this cough more, but I'll just make sure I have constant access to fluid as that does help! It's like getting married again with the glass of water on the altar rail - and it was water, not vodka! I managed to cure the cough that year by flying to Florida and having a helpful steward keeping me constantly supplied with iced water! Not sure the NHS would pay for a trip to the Magic Kingdom just to stop me coughing! Plus my passport is out of date and it appears there is no way to get a fast replacement at the moment! And I couldn't go alone, I'm happy to drive there but I need a navigator and neither Andy nor Mikey have valid passports either!!

Thankfully I'm not on anymore antibiotics and I've finished the steroids so once I get those out of my system I hope I'll start feeling more human. I have no idea how long that takes - hopefully it'll be quick!