Wednesday 29 December 2021

Christmas completed

 I've survived Christmas! I'm impressed as my INR was up to 8.0 which meant I was at high risk of a serious bleed! It has also left me feeling even more exhausted than normal and I could happily sleep for England at the moment!!

The Amazon wish list fiasco of last year repeated again this year. I'm annoyed as I've got Andy things he wants and actually needs - but so have other people. But it's my gifts that get sent back rather than him telling his family they have messed up. I know I shouldn't react but yet again I've got it wrong...

Today we bribed Mikey with a trip to the Haribo shop so he was up in time for my hospital appointment! He came home with a few tubs and bags so we've hardly seen him today! Tomorrow it's a quick trip to M&S to get some nibbles for New Year's Eve. I am still being really good and avoiding alcohol...I really don't need anything else reacting with my medication right now. At the moment I'd just like a few quiet weeks as I know I need a full load of renal tests in about 7 weeks time. And I'm really hoping those results don't move so I can just keep trying to keep going on a level playing field.

Friday 17 December 2021

Update

 I appear to have moved on from Covid! I now have a pulmonary embolism and am under the care of the Anticoagulant Clinic. I started off injecting an Anticoagulant drug every day but have now moved to warfarin. It has started to look as though I an unable to cope with this as I am feeling sick 24/7. I raised this with the senior nurse today and she is referring me to the consultant of the week in the hope I can be moved to a different drug and feel happier.

In the meantime my INR levels have shot up and I am covered in horrific bruises and lumps which don't ever seem to go down. Basically breathing is a challenge and I am an even stranger shape than normal which is really impacting the little body confidence I had left. Plus I keep catching the sore, painful bumps with my arms and this is not beneficial to my mood/state of mind. I have had enough and really need a break. Preferably on another planet...

I am still feeling incredibly lonely. Andy is still working from home and is allowed to yell at his laptop as much as he wants to. But I am meant to stay silent and not cause any type of distraction or noise. If I had enough energy I would go and steal a dog for some company as he is making it very obvious that I will never get one if my own. At least I could talk to a dog...and it wouldn't such me.